Sickle cell disease (SCD) is a complex group of inherited blood disorders associated with debilitating pain and complications that can affect the entire body. SCD affects about 100,000 people in the United States; more than 90% are non-Hispanic Black or African American, and an estimated 3%-9% are Hispanic or Latino.
Establishing organized systems of care that ensure both clinical and nonclinical supportive services is critical to improving outcomes and reducing health disparities for all individuals with SCD.
Observances and Events
June 19: World Sickle Cell Day
World Sickle Cell Day is observed annually with the goal to increase public knowledge and an understanding of sickle cell disease, and the challenges experienced by patients and their families and caregivers. This year's global theme is "Global Action, Local Impact: Impowering Communities for Effective Self-Advocacy."
September 1 - 30: National Sickle Cell Awareness Month
National Sickle Cell Awareness Month is observed in September to raise awareness about SCD and the challenges faced by those living with it. This month focuses on increasing understanding of SCD, promoting research, and supporting individuals and families affected by the condition. Follow OMH on X (English and Spanish), Instagram, and Facebook for updates on events and resources for National Sickle Cell Awareness Month 2025.
Understanding the Dynamics of a Comprehensive Sickle Cell Disease System of Care Virtual Roundtable
Join OMH this September for a virtual roundtable in honor of National Sickle Cell Awareness Month. OMH and its partners will share key elements of a comprehensive SCD system of care. More details, including the date and time, will be announced in August 2025.
Resources
Sickle Cell Disease Research, Programs, and Progress
National Heart, Lung, and Blood Institute
Sickle Cell Disease Data, Resources, and More
Centers for Disease Control and Prevention
Last Edited: 06/18/2025