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Lupus Grants

National Health Education Lupus Program (NHELP)

Grant Period: 2016-2017
Priority A Grantees City

State

Funding Level
American College of Rheumatology Exit Disclaimer Atlanta GA $335,000
Association of State and Territorial Directors of Health Promotion and Public Health Education Exit Disclaimer Washington DC $329,946
National Alliance for Hispanic Health Exit Disclaimer Washington DC $334,905
Total: $999,851
Priority B Grantee City

State

Funding Level
Lupus Foundation of America Exit Disclaimer  Exit Disclaimer Washington DC $997,962
Total for all grantees: $1,997,813

The purpose of the National Health Education Lupus Program (NHELP) is to reduce lupus-related health disparities among racial and ethnic minority and/or disadvantaged populations disproportionately affected by this disease under two priority initiatives:

    • Priority A: to conduct a national health education program on lupus to increase and improve awareness, diagnosis, and treatment outcomes for individuals living with lupus;
    • Priority B: to develop and begin implementing an education program on clinical trials that educates and recruits minorities and/or disadvantaged populations, particularly groups underrepresented in clinical research.

The NHELP initiative will support three grantee programs under Priority A that will aim to increase: (1) the number of health professionals and student trainees who are knowledgeable and skilled in the diagnosis and treatment of lupus; (2) the number of health professionals with enhanced knowledge and expertise in the signs and symptoms of lupus, treatment adherence, and screening; (3) the number of people who are aware of the disease and knowledgeable about its symptoms and warning signs; and (4) the number of providers that use culturally and linguistically appropriate lupus materials to disseminate information to patients and families, including educational and multi-media materials.

NHELP will support one grantee program under Priority B to develop and begin implementing an education program on clinical trials that educates and recruits minorities and/or disadvantaged populations, particularly groups underrepresented in clinical research.

NHELP will help facilitate the development of a structure for involvement, and regular engagement of, community and partnering organizations in the design and review of strategies, tools, resources, and approaches needed to carry out this initiative. Community and partnering organizations will reflect a wide range of health partners, including minority health professional associations, medical and nursing professional associations, medical and nursing schools, schools of allied health professions, and health care organizations.

This program begins July 1, 2016 and ends June 30, 2017.


National Health Education Program on Lupus (NHEPL)

Grant Period: 2015-2016

The National Health Education Program on Lupus (NHEPL) is intended to reduce lupus-related health disparities among racial and ethnic minority populations disproportionately affected by this disease by conducting a national lupus education initiative that includes the general public, health professionals and student trainees in targeted communities, schools, and health care systems and practices. The NHEPL targets individuals, patients and their families, communities, and practicing professionals in geographic areas and populations where lupus is more prevalent. NHEPL projects began August 1, 2015 and will end July 31, 2016.

Grantees

City

State

Funding Level
American College of Rheumatology Exit Disclaimer Atlanta GA $500,000
ASTDHPPHE (Association of State and Territorial Directors of Health Promotion & Public Health Education) Washington DC $500,000
Lupus Research Institute, Inc. Exit Disclaimer New York NY $499,730
Northwestern University Exit Disclaimer Evanston IL $488,949
Total: $1,988,679

National Health Education Program on Lupus for Healthcare Providers (NHEPLHP)

Grant Period: 2014-2015

NHEPLHP is a collaboration between the Office of Minority Health, in collaboration with the Office on Women’s Health and the Office of the Surgeon General, to promote lupus diagnosis and treatment. This initiative continued the national health education program on lupus for health care providers, with the goal of improving diagnosis for those with lupus and reducing health disparities. The program was intended to engage health care providers, educators and health professions schools in working together to improve lupus diagnosis and treatment through education. The goal of the NHEPLHP is to support the development and dissemination of a national lupus health education program to improve diagnosis and treatment for persons with lupus and to reduce health disparities in target populations. The NHEPLHP targeted practicing physicians, nurses and other allied health professionals, and medical, nursing and other allied health students in training. This program ended August 31, 2015.

Non-Federal NHEPLHP Grantee City State Funding Level
American College of Rheumatology Atlanta GA $2,000,000


Eliminating Lupus Health Disparities Initiative

Grant Period: 2012-2013

This initiative focuses on dissemination of a national lupus education program to health professionals and student trainees in targeted schools and health care systems/practices.

Grantee City State Funding Level
American College of Rheumatology Exit Disclaimer Atlanta GA $1,000,000
Last Modified: 7/6/2016 9:42:00 AM