Blog: National Partnership for Action
Smartphone and mobile apps: An important solution to increasing participation and engagement of minority and underserved communities
Posted on 8/22/2013 by Regina Greer- Smith, MPH FACHE
These are exciting times. Today, technology allows us to advance knowledge and empower members of underserved communities with information at rapid speed and with minimal cost. Considering the use of smartphone and mobile apps may be an important solution to increasing participation and engagement of minority and underserved communities in patient-centered outcomes research and comparative effectiveness research. Patient-centered outcomes research involves research that brings both the patient and providers together for shared decision-making for better outcomes and determining the costs and benefits of one course of treatment over another.
According to the Pew Internet and American Life Project , minorities (along with young adults) are leading consumers of health information via mobile platforms. African Americans and Latinos are more likely to own a mobile phone than whites and outpace whites in mobile app use. African Americans are using Twitter to share information, especially about neighborhood events. This information should be leveraged by researchers to use mobile apps and smartphone technology in research engagement with minorities and underserved communities.
Taking the concept a step further, creating apps that deliver education and information from trusted members of communities – such as ministers, physicians and researchers – could increase wider participation because of the trust and relationships that are already in place.
As an example, an innovative research project to engage African American women in research is now underway. Women stay connected using a smartphone app to learn about breast cancer, receive messages about the importance of participation in clinical trials and connect with researchers who they select to work with.
Developing mobile apps to include education and resources about the benefits of participating in patient-centered outcomes research and topics of interest to minority populations could increase their participation and involvement. Consider the possibilities for raising awareness and advancing health equity in research through mobile apps:
Developers and researchers must be aware that patients, caregivers and other community stakeholders are key partners in the development of mobile apps, because mobile apps are being developed for their use to enable and increase their participation – and not solely for the use of the researcher as a recruitment vehicle.
In January, 2013, Regina Greer-Smith, along with a team of healthcare professionals, formed The Midwest /Partners Patient Engagement Cluster , (MPPEC) resulting from involvement with The Patient-Centered Outcomes Research Institute (PCORI), a non-profit organization created from the Patient Protection and Affordable Care Act in October 2012. MPPEC’s mission is to engage patients and researchers in patient-centered outcomes research (PCOR) and comparative effectiveness research (CER).
Posted in: Health Minority Populations NPA Partners Promising Practices Health Disparities Prevention African American Health Care Health Equity Hispanic/Latino Minority Health Research & Evaluation | Comments (1) | Add a Comment | Comment Policy | Permalink
By Sushrut Padhye on November 20, 2014
Smartphones and mobile apps not only increase participation and engagement, they beneficial in so many different ways. A depressed black kid might not not be able to tell about his ailment to anyone in person but he won't hesitate once in discussing it with any of his friends via an app like Whatsapp. Apps in particular have provided the young generation the freedom to do things without having to worry about anything. Apps like Instagram, Snapchat and Viber allow you express yourself unfettered. This has been the biggest achievement of mobile apps and technology in general. This freedom has permeated to other sections of society and have had several positive consequences in terms of how black community has progressed.
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About the Blog
The NPA works to achieve health equity -- the highest level of health for all people. This blog is a venue for professionals from all fields and sectors to share their thoughts on pressing issues, news and events pertaining to health equity. Follow and participate in this candid discussion.
About the Author
Regina Greer- Smith, MPH FACHE, is president of Healthcare Research Associates, LLC, located in Hazel Crest, IL. Regina’s work includes developing collaborations between researchers and underserved and communities of color to engage and participate in patient-centered outcome research. Patient Engagement Clusters© are formed to educate and enable participation in research.
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